Publications

Abstract

e13522

Background: In 2022, India had the second-highest incidence of cervical cancer globally, with 127,356 new cases, and the highest number of related deaths at 79,906. Survival rates for cervical cancer vary widely across the country, and this study highlights the dire situation in Assam's Cachar district in Northeast India, where access to screening and treatment is limited. Methods: Between February 2020 and April 2024, Breast Cancer Hub (BCH), a nonprofit serving 100% Free, conducted a door-to-door survey across 18 rural villages in Assam, reaching 11,277 females from 8,085 families. The study gathered data through BCH-designed questionnaires on cervical cancer awareness, screening practices, symptoms, lifestyle, family history, socio-economic conditions, and other factors. Data was collected by BCH teams in the field and analyzed using descriptive statistics. Results: This study is the first to report a door-to-door survey of 11,277 women in the rural areas of Assam, including 17 villages and one tea garden estate. The findings revealed a complete lack of awareness about cervical cancer symptoms—0% of participants knew the signs. Additionally, 0% had undergone a Pap smear or HPV screening. Due to taboo, women hesitated to share concerns. They sought medical attention at an advanced stage, often followed by treatment abandonment due to limited access to healthcare facilities, leading to death. The survey also found that 66.86% of the women used tobacco, a major risk factor for cervical cancer. Of 107 suspicious cases identified, 96 (89.71%) were regular tobacco users. Poor hygiene due to low socio-economic conditions and the use of contaminated water in reproductive areas also contributed to the risk. Villagers faced significant barriers to healthcare, such as the inability to afford travel to distant hospitals. Lack of awareness about government healthcare schemes for poverty-stricken populations further exacerbated the issue. Intervention: In response to these challenges, BCH implemented a sustainable approach to improve access to care. BCH helped transport women to hospitals for further screening, provided financial assistance for diagnosis and treatment, and helped with registration and communication with healthcare professionals. BCH supported women with follow-up care, counseling, and ongoing assistance to ensure they received comprehensive treatment. Conclusions: BCH’s initiative is a pioneering effort in Assam’s remote villages, providing a holistic, sustainable framework for improving cervical cancer survival. By combining education, access to care, and continuous support, BCH is making strides in overcoming healthcare disparities and enhancing cervical cancer awareness and treatment in these underserved areas.